Thursday May 12th is dedicated to World Day of Fibromyalgia, characterized by chronic diffuse pain, affecting more than one in 100 adults in France. Date, origin, events, blue ribbon, numbers… All about the 29th edition of Fibromyalgia Day.
that Thursday, May 12, 2022 is dedicated to World Fibromyalgia Day (and Chronic Fatigue Syndrome), the main symptom of which is chronic diffuse painoften associated with other symptoms such as severe fatigue, sleep disorders, attention and memory. The goal of this day? Raising awareness and disseminating as much information as possible to the general public, the media and the medical community about fibromyalgia (or Fibromyalgia Syndrome) which would affect at least 1.6% of the French adult population, reports the Ministry of Health (between 1.4 and 2.2% of French adults according to Inserm). Fibromyalgia was recognized 1992 by the World Health Organization. However, due to its heterogeneous clinical manifestations, difficult diagnosis, and wide variability in severity, fibromyalgia remains to understand a complex disease. Date, Origin, Actions, Band… Everything about the 29th edition of world fibromyalgia day.
What is the Origin of Fibromyalgia Day?
May 12 is a symbolic date, chosen not by accident to “celebrate” fibromyalgia. This is the birthday of Florence nightingalea British-born nurse in 1820 who, despite her severe form of fibromyalgia (she spent the last 50 years of her life bedridden), founded the International Red Cross Foundation and the first school for nurses.
When is Fibromyalgia Day?
Fibromyalgia Day is taking place this year Thursday, May 12, 2022. it’s about the 29th edition.
Why Wear a Blue Ribbon to Fibromyalgia Day?
To support fibromyalgia patients, each of us is invited to put on our clothes or bag a pin or blue ribbonSymbol of Fibromyalgia and Chronic Fatigue Syndrome Recognition established in 2006 by theFibromyalgiaSOS Association. Ribbons and pins can be purchased on the club’s website (one ribbon = 2 euros, one pin = 3 euros, prices go down if you buy more than one)
What are the World Fibromyalgia Day actions?
Despite remarkable advances in the diagnosis, detection and treatment of the disease, fibromyalgia remains relatively unknown. Mainly because they exist a variety of symptoms and Effect varies from person to person and over time. Measures of the Ministry is about improving the health and quality of life of people with chronic pain and fibromyalgia 4 axes :
- Inform better
- Diagnose beforehand
- Structure the supply chain better supports chronic pain
- strengthen research for chronic pain and fibromyalgia
In this regard, several cities are mobilizing to mark the 29th World Fibromyalgia Day:
► Thursday, May 12 at 10 a.m.: March against fibromyalgia organized by the Social and Economic Committee of the 3S (Scarpe Sensée Services) in favor of research on fibromyalgia (contribution of 1 euro). Ecost Saint Mein (62)
► Saturday, May 14 from 3:00 p.m. to 4:30 p.m.: the association FibromyalgieSOS organizes a video conference on the topic: “Some sensible ideas about fibromyalgia to understand and tame. As Hippocrates would have explained and facilitated“.
► Sunday, May 15 from 3:00 p.m. to 6:30 p.m.: Concert by 4 choirs in favor of fibromyalgia and information stand in Sauvian (34)
► Wednesday May 18: Conference and Patient Voices “What if we talked about fibromyalgia?” in Albi (81)
What are the numbers for fibromyalgia in France?
- At least 12 million French suffer from chronic pain, half of them with reduced quality of life (Ministry of Health). Pain is the first reason for a consultation, in the emergency services and at the family doctor.
- Fibromyalgia would affect 1.6% of the adult population in France (Ministry of Health)
- affects fibromyalgia mostly women between the ages of 30 and 55so far without explanation: 8 to 9 cases out of 10 (Health insurance)
What are the associations against fibromyalgia?
Some examples of associations for people with fibromyalgia and their families (non-exhaustive list):
- Fibromyalgia SOS
- Fibromyalgia France
- Association VAFSFC: Living with Fibromyalgia and Chronic Fatigue Syndrome
Sources: Fibromyalgia Bulletin, Ministry of Health website / Health Insurance Fibromyalgia Bulletin / Fibromyalgia Syndrome of HAS / May 12, World Fibromyalgia Day, INSERM (April 28, 2022)